PARENT PROJECT MUSCULAR DYSTROPHY - INDIA

  • Parent Project Muscular Dystrophy (PPMD) is a registered charity organization for more than a decade with only objective to provide best possible help and assistance to the Muscular dystrophy patients.
  • PPMD’s sole primary objective is to work collectively towards providing information, solutions, latest standards of care, and treatment guidance if possible for children, irrespective of what caste, creed and different levels of society or state of India they belong to.
  • The committee members consist of team of young parents who are actively involved with various researchers around the world who have been working very scientifically with different lines of approaches to provide treatments for this devastating genetic disease which is labeled as orphan by most of the countries FDAs.
  • Parent Project Muscular Dystrophy’s Board of TRUSTEES are parents themselves whose sons are living with Duchenne since past many years. Unlike many nonprofits, PPMD’s Board is not only governing the organization, but directly working within many of PPMD’s programs.
  • To connect and support parents we also have WhatsApp groups.

Meet the Trustees

1. Ambrish Kapadia – Trustee
Ambrish Kapadia, a commerce graduate is a businessman who lives in Mumbai with his family. His son was diagnosed with Duchenne Muscular Dystrophy in 2008 at 18 months of age then. He along with other trustees has been putting his best efforts to connect with the researchers and scientists working tirelessly for DMD in different universities of the world so that collaborations can be done with them to initiate research and clinical trials here in India so that our kids are benefitted.

2. Anand Shah - Trustee
Anand Shah, Lives in Mumbai and his son was diagnosed with Duchenne Muscular Dystrophy in 2009 at 3 years of age then. He is a Director of a Private Real Estate firm and handles day to day functioning of the Trust.

3. Faizan Gubitra – Trustee.
Faizan Gubitra, Lives in Mumbai and his son was diagnosed with Duchenne Muscular Dystrophy in 2009 at 4 years of age then. He is a Director of a Private Real Estate firm and handles day to day functioning of the trust.

All these three trustees along with other enthusiastic parents from Mumbai like Jyoti Bharadwaj, Dhara Mamania, Veenu Kohli, Neelam Devjani to name a few are ardently trying to the best of their abilities to commence research and clinical trials here in India by not only connecting with the Indian regulators, clinicians , scientists/ researchers world wide, Indian and international companies but also raising required funds for pre- clinical and clinical studies.