PARENT PROJECT MUSCULAR DYSTROPHY - INDIA

CARE

DOCTORS

SpecializationName of DoctorHospital / PlaceContact DetailsDrugs/Medicines
Pediatric NeurologistDr. UdaniHinduja Hospital , Mumbai022-24447206Anti-inflammatory drugs
Pediatric NeurologistDr Anaita HegdeSRCC Children Hospital, Mumbai1860 208 0208 / 022-23517883Anti-inflammatory drugs
Pediatric NeurologistDr Krupa TorneSir HN Reliance Hospital,  Mumbai1800 221 166Anti-inflammatory drugs
Paediatric CardiologistDr. Kshitij Sheth

Private clinic /

Sir HN Reliance Hospital,  Mumbai

8450971911 / 1800 221 166Monitoring dystrophic  hearts with  Cardiac drugs
Paediatric EndocrinologistDr. Prashant PatilSRCC Children Hospital, Mumbai1860 208 0208Bone Health with Bisphosphonates
PulmonologistDr. Nimesh ShahSir HN Reliance Hospital,  Mumbai1800 221 166

Help in monitoring Lung Functions

 

PhysiotherapistDr. Poonam BajajSir HN Reliance Hospital,  Mumbai1800 221 166

Muscle charting, Gait Analysis

 

Yearly Test for Monitoring and Evaluation:

TESTHospital / PlaceContact
DEXA ( Z scores are mandatory )Hinduja Hospital and Zankharia , Mumbai022-24441717
CARDIAC MRISir HN Reliance Hospital,  Mumbai1800 221 166
Blood TestAs advised by respective Doctors

EXON DELETION TOOL

If your child has already had a genetic test and the mutation is an exon deletion, this educational tool can help you prepare for a discussion with your child's doctor or genetic counselor. https://www.duchenne.com/exon-deletion-tool