DOCTORS

Specialization	Name of Doctor	Hospital / Place	Contact Details	Drugs/Medicines
Pediatric Neurologist	Dr. Udani	Hinduja Hospital , Mumbai	022-24447206	Anti-inflammatory drugs
Pediatric Neurologist	Dr Anaita Hegde	SRCC Children Hospital, Mumbai	1860 208 0208 / 022-23517883	Anti-inflammatory drugs
Pediatric Neurologist	Dr Krupa Torne	Sir HN Reliance Hospital, Mumbai	1800 221 166	Anti-inflammatory drugs
Paediatric Cardiologist	Dr. Kshitij Sheth	Private clinic / Sir HN Reliance Hospital, Mumbai	8450971911 / 1800 221 166	Monitoring dystrophic hearts with Cardiac drugs
Paediatric Endocrinologist	Dr. Prashant Patil	SRCC Children Hospital, Mumbai	1860 208 0208	Bone Health with Bisphosphonates
Pulmonologist	Dr. Nimesh Shah	Sir HN Reliance Hospital, Mumbai	1800 221 166	Help in monitoring Lung Functions
Physiotherapist	Dr. Poonam Bajaj	Sir HN Reliance Hospital, Mumbai	1800 221 166	Muscle charting, Gait Analysis

Yearly Test for Monitoring and Evaluation:

TEST	Hospital / Place	Contact
DEXA ( Z scores are mandatory )	Hinduja Hospital and Zankharia , Mumbai	022-24441717
CARDIAC MRI	Sir HN Reliance Hospital, Mumbai	1800 221 166
Blood Test	As advised by respective Doctors

EXON DELETION TOOL

If your child has already had a genetic test and the mutation is an exon deletion, this educational tool can help you prepare for a discussion with your child's doctor or genetic counselor. https://www.duchenne.com/exon-deletion-tool